Research Evidence
1. DEVELOPMENT & VALIDATION
The original research describing the development and validation of IBD-Control was published in 2014. This paper describes how the team in Liverpool (UK) worked closely with patients to develop and test the questionnaire:
Bodger K, Ormerod C, Shackloth D, et al. Development and validation of a simple, generic measure of disease control from the patient perspective: The IBD-Control Questionnaire. Gut 2014; 63:1092–1102.
Elective Care Centre, Aintree University Hospital, Liverpool, United Kingdom
2. INTERNATIONAL RECOGNITION
The IBD-Control Questionnaire was selected for the ICHOM Standard Set for IBD in 2018. The International Consortium for Health Outcomes Measurement encourages the adoption and reporting of patient-centred measures to drive improvements in healthcare.
Kim AH, Roberts C, Feagan BG et al. Developing a Standard Set of Patient-Centred Outcomes for Inflammatory Bowel Disease-an International, Cross-disciplinary Consensus. J Crohns Colitis. 2018 Mar 28;12(4):408-418.
In 2023, a Core Outcome Set (COS) for IBD was published following an international consensus process involving patients, clinicians and outcomes research experts. IBD-Control was selected as one of PROMs recommended for capturing patient-reported health status.
Fierens L, Carney N, Novacek G et al. A Core Outcome Set for inflammatory bowel diseases: development and recommendations for implementation in clinical practice through an international multi-stakeholder consensus process. J Crohns Colitis. 2023 Nov 29:jjad195. doi: 10.1093/ecco-jcc/jjad195. Epub ahead of print.
3. LINKS TO OTHER RESEARCH
There are over 140 research articles published in peer-reviewed journals which cite the IBD-Control Questionnaire. Click the link below to browse some of the literature.